AS seems to have times when it flares up or worsens and times when it seems more manageable or settled.
We have put together some advice on managing flares.
Talk to your rheumatologist or your GP about how you can adjust your usual medications if your AS flares. Find out the maximum dose to which you can safely increase your usual medications. Ask which other medications you can safely add.
So, if you are on an anti inflammatory such as naproxen, be clear about the maximum daily dose and know what dose of paracetamol you can safely add.
Write down the information you are given and keep it somewhere safe so you can refer to it when needed.
Make sure you have the medication you need and if you are travelling don't forget to pack it in your hand luggage. There's more information on travelling on the NASS website.
Avoid high impact exercise such as running if you are having a flare or feel you may have one coming on.
Talk to your physiotherapist about the type of gentle stretching exercises that would be most suitable for you during a flare.
There are suggested stretching exercises in our Back to Action exercise guide.
Take the time to write down a list of the things that you know make you feel better when your AS is worse and pin it up somewhere in your home.
That way you have some helpful pointers ready for if you do flare. Some things that people have told us make them feel better include:
- A long, hot bath
- Gently stretching in a long hot shower
- Using an electric under-blanket in bed
- Alternating between hot water bottles or wheat bags and ice packs
- Watching your favourite DVD or playing your favourite music. Try keeping a special mood busting play list on your iPod for when you really feel down and stressed with your AS
Burn-out in AS - fact or fiction?
Some people with AS were told by their rheumatologist that their AS might ‘burn out' eventually. By ‘burn out' rheumatologists meant that the inflammation will stop along with most of the pain, tiredness and stiffness.
There are surprisingly few real facts about whether burn out does actually happen in AS. This is partly because measuring inflammation in the spine has been and remains a pretty inexact science.
Current thinking is that AS probably does burn out and become inactive for a few but we can't predict in who or when this might happen. Much more often burn out simply means that people are now able to tolerate symptoms which may have been ongoing for many years.