News

Secukinumab (Cosentyx®) recommended by NICE for AS

NASS are delighted to hear that NICE has recommended secukinumab (Cosentyx®) as an option for treating active AS in adults whose disease has responded inadequately to conventional therapy (non-steroidal anti-inflammatory drugs or TNF-alpha inhibitors). This recommendation has been published by NICE in what is called a Final Appraisal Determination (FAD). This means that...


Poppy's Seeds of Wisdom

Rheumatology Research Nurse, Poppy Hocken, has a fantastic knowledge of AS - both through her work and through her own personal experience. Poppy has very kindly offered to share her knowledge on our Helpline every month. If you'd like to book in a chat with Poppy contact Sally.  Poppy will be...


Edgar Stene Prize 2017 open for entries

  The 2017 Edgar Stene Prize Competition is now open. People aged 16+ living with a rheumatic condition (including AS) are invited to submit an essay on the topic of:   Time is joint - Joints over time Early diagnosis and access to care in rheumatic and musculoskeletal diseases (RMDs)...


AStretch Conference 2016

  AStretch are delighted to announce that their 8th conference will take place on Saturday 3 December at the Crowne Plaza Hotel, Birmingham. The conference is specially designed for physiotherapists, assistants, technicians, nurses, occupational therapists and student physiotherapists who have an interest in AS. This year the key note...


NASS partners with Mablethorpe Marathon

  NASS is delighted to announce that it has become a charity partner of the Mablethorpe Marathon - and we'd love you to get involved. Debbie Cook, NASS Chief Executive, has joined the marathon committee as a volunteer and is helping support its organisation. The next event takes place in the...


Change to adalimumab (Humira) pens

Good news for people taking adalimumab (Humira) The manufacturers (AbbVie) have altered the production methods for Humira slightly and have been able to remove the citrate in the holding solution. This is what causes the stinging feeling when you take your Humira injection. Research shows that the removal of...


Ankylosing spondylitis and pregnancy

A group of researchers based in Cyprus are carrying out a large scale study into rheumatic conditions and pregnancy. Most women with AS are diagnosed during their childbearing years. This study focusses on the effects of rheumatic diseases on conception and pregnancy. It will analyse the different gynecological and...


Hannah's CD to support NASS

London-based singer Hannah Scott is raising vital AS awareness and funds for NASS by donating from sales of her CD, recorded just weeks before she was diagnosed with AS. Hannah recorded ‘Live at the Hospital Club’ whilst in excruciating pain, but had been wrongly diagnosed by her GP with...


Increase in prescription charges in England - join the campaign

1 April 2016 saw prescription charges in England rise to £8.40 per item.  They have risen almost every year since 1979 and, as a member of the Prescription Charges Coalition, NASS are campaigning to secure exemption from outdated charges for everyone with AS and other long-term conditions in England....


The BSRBR Ankylosing Spondylitis Register

In 2012 the British Society for Rheumatology (BSR) Biologics Register for AS patients was launched The register was set up with the aim of monitoring the long-term safety of anti TNF treatments and increasing our understanding of their effects. This will include studying how well they work for people with...


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