Many people living with axial SpA (AS) including ankylosing spondylitis (AS) know that often people don’t know much about the condition at all and find it hard to understand:
At my lowest point when I was in agony and could barely move, a work colleague of mine was going through breast cancer. Despite the fact she was well enough to work and go out partying, she was treated with kid gloves by all around her. I watched from my vantage point of severe agony while she was diagnosed and treated swiftly with the best the land could offer. The lack of support from people around me is what I carry with me bitterly. Cancer, they could deal with. Ankylosing spondylitis? First the slight look of confusion, then the embarrassed titter about…. the name, ‘What? What a funny name…Ank… what…?’ If I tried explaining it would be brushed off as a bit of arthritis, ‘Oh my mums got that in her hand…’.
Read our axial SpA (AS) facts below to find out more about the condition.