Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.

We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

If you are able to make a donation to NASS today, we'd be so grateful.


Twenty Twenty Done: Our Impact in 2020

As the Covid-19 pandemic hit, people needed our support more than ever

We have been changing the lives of people living with axial SpA (AS) for more than 40 years and remain determined to ensure that no one is locked out of life because of axial SpA. We know with the right information, guidance and support, anyone can develop the skills and confidence they need to live well with the condition.

The Covid-19 pandemic may have over-shadowed 2020, but thanks to the support of everyone in our community, our work to deliver our new five-year strategy didn’t stop.

Despite significant challenges, we continued to campaign policy makers for better services, worked with the NHS to improve care and made sure people got the latest information and support they needed to tackle the challenges of life with the condition.

During 2020:

  • Our helpline supported more than 5,600 people
  • We helped people obtain more than £852,000 in disability benefits
  • To combat isolation, we called more than 500 people during lockdown
  • Our campaign to ensure people had access to vital NHS services during the pandemic and beyond was supported by 863 people
  • Videos we produced to empower people to manage the challenges of life with axial SpA were watched 135,000 times
  • We called for the first Gold Standard to end the unacceptable 8.5-year delay to diagnosis of axial SpA and secured a landmark parliamentary debate
  • And delivered the largest programme in the UK to improve the quality of care for axial SpA patients.

Want to know more about the difference we made in 2020? Download a copy of our latest Impact Report.

Axial SpA works silently. But we don’t

We couldn’t have done this without your generosity

Did you know that NASS receives no statutory funding? We rely on the generosity of our community to do our life-changing work, but 2020 was a challenging year for fundraising, with many events cancelled or postponed.

We want to say a big thank you to everyone who found inventive ways to fundraise or donate during the Covid-19 crisis. Your support meant that we could carry on helping thousands of people live well with axial SpA.

To find out more about donating, joining NASS as a regular supporter, leaving a legacy, or fundraising to support our work, please contact Laura Hyde, Fundraising Manager.