Imagine if you’d started to experience severe pain during the London 2012 Olympic Games, all those years ago. And imagine that despite many visits to your doctor, you were still experiencing that pain today – and yet none of the medical professionals you’ve seen have worked out why.
That’s the reality for people living with axial spondyloarthritis (axial SpA) including ankylosing spondylitis (AS), a form of inflammatory back pain that often begins in your late teens or twenties. In the prime of your life, a debilitating condition stops you living your best life.
Axial SpA affects 1 in 200 people in the UK – that’s more common than MS and Parkinson’s combined – but on average it takes 8.5 years to diagnose, and that’s just not good enough. We want to bring that average time to diagnosis down to one year, because with prompt and effective treatment, people with axial SpA can live happy, successful lives free of pain. But to do this, we need your help.
By joining NASS, you’ll be helping us to raise awareness of axial Spa in the media, among MPs and policy makers, and in the general public. And crucially, you’ll be joining a growing movement of people who think the present delay to diagnosis just isn’t good enough and needs to change.
Your membership – for just £2 a month – will help us to change lives. In return you’ll receive a welcome pack, our magazine AS News, regular updates on our campaigning activity, and access to the members-only section of our website. Please join us today!