NASS work in partnership other organisations to make sure that we get the best possible outcomes for people with AS.
NASS is a member of the ARMA. This is an umbrella body for the arthritis and musculoskeletal community in the UK. We work with ARMA to persue these goals:
• Musclar and skeletal disorders (MSDs) to be recognised as a health priority
• Care that meets the needs of people with MSDs
• Access to the right care, in the right place, at the right time
• People with MSDs to be able to live a healthy, independent and fulfilling life
NASS is a member of National Voices, a coalition of organisations that work together to strengthen the voice of patients, service users, carers, their families and the voluntary organisations that work for them.
The Prescription Charges Coalition is calling on the Government to extend exemption from prescription charges to all those with long-term conditions in England. In recent years, there has been a broad political consensus that the current system is unfair as some long-term conditions qualify people for free prescriptions whilst others don't. This sense of unfairness has been exacerbated since the introduction of free prescriptions for people living in Wales, Scotland and Northern Ireland.
The DBC is a national coalition of over 50 different charities and other organisations committed to working towards a fairer benefits system. Using our combined knowledge, experience and direct contact with disabled individuals and carers, we seek to ensure Government policy reflects and meets the needs of all disabled people.
NASS worked with 2020 Health to publish a report highlighting the lack of awareness about AS called: Ankylosing Spondylitis: Hard to say, hard to see. time to hear
Application of recommended standards and best practice
Need to increase the participation and responsibility of patients, professionals and policy makers in AS care and treatment
Need to improve rates of diagnosis
Patients are supported with appropriate long-term care and treatment