Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.
We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.
If you are able to make a donation to NASS today, we'd be so grateful.
NASS receives no statutory funding, and we rely on the generosity of our community to continue our work. Your donation will help provide specialist support, advice and the most up-to-date information to help empower everyone living with axial SpA (AS) to manage their condition. It makes sure that everyone has somewhere to turn for support when they need it most.
Here’s how your donation to NASS can make a difference;
£10 can enable our Helpline team to respond to a call or email and provide guidance and advice to anyone affected by axial SpA (AS). £25 could help provide a pack of NASS guidebooks for a local axial SpA clinic. £50 could help our team provide 1:1 welfare and benefits support for someone living with axial SpA (AS). £100 could help by contributing towards the cost of one of our weekly My AS My Life sessions to help people living with axial SpA (AS) manage their symptoms between hospital appointments. £250 could help us run an online session to help up to 20 people learn how to manage symptoms of axial SpA, such as pain, fatigue and sleep.
Thank you. Together we can make sure that no one has to face axial SpA (AS) alone.
“I called NASS because my son has just been diagnosed with AS. Sally was so helpful, and talked me through everything and send me helpful booklets. I now have lots of information which me and my son will find useful. Sincere thanks.” – Margaret from Middlesex
Adults in the UK
1 in 200 of the adult population in the UK have axial SpA (AS). That's twice as many as multiple sclerosis and Parkinson's disease.
Axial SpA (AS) is a condition that affects young people. Symptoms start late teens to early twenties, with the average age of onset being 24.
Years to diagnosis
The current average delay to diagnosis from when symptoms start is 8.5 years, by which irreversible damage to the spine may have occurred.
59% of people with axial SpA (AS) report experiencing mental health problems compared to 25% of those with musculoskeletal conditions overall.