Game your way. Raise funds for NASS.
It’s easy to join and play your way.
There will be two teams to choose from:
- #NASSGamer for those of you who love video gaming and streaming.
- #NASSirl for those who prefer traditional board games, garden games or quizzes.
There will be 3 ways you can join.
Livestream with team #NASSGamer
Whether you’re an experienced streamer or new to streaming, it’s easy to get started. Perhaps you’re a Mario Kart fan? Or maybe The Legend of Zelda or Forza Horizon is your thing? Just pick your favourite game, game on your own, or game with friends. Then all you will need to do is:
- Choose your streaming platform. Just Giving supports YouTube and Twitch, so you’ll need to set-up an account with one of those streaming services to join in and link your account to the live stream.
- Pick a timeslot. Whether you’re gaming for one hour or 12 hours, tell us about your challenge and when you’ll be streaming between 4-6 August, and we’ll help promote your fundraiser.
- Publicise your live stream. You can use our toolkit to encourage people to donate and watch your live stream.
Don’t want to livestream? You can still game with team #NASSGamer
Simply invite your friends to join you in a gaming tournament online or in person, and ask them to donate to take part. Or set yourself a gaming challenge, play on your own and ask your friends and family to sponsor you.
Not an online gamer? Then host a traditional games night and join team #NASSirl
Gaming not your thing? You will still join us by hosting a traditional gaming night.
- Choose your game. It could be Cluedo, Monopoly or an old-style game of Dungeons and Dragons. Or perhaps you want to get outside and play Garden Jenga?
- Host it at your home, in your local pub or perhaps at your local community centre. Just invite your friends, charge an entry fee to raise money and enjoy the event.
- Don’t forget to send us your pictures from the event.
The impact of your support
- £10 can enable our Helpline team to respond to a call or email and provide guidance and advice to anyone affected by axial SpA.
- £25 could help provide a pack of NASS guidebooks for a local axial SpA clinic.
- £50 could help our team provide 1:1 welfare and benefits support for someone living with axial SpA.
- £100 could help by contributing towards the cost of one of our weekly My AS My Life sessions to help people living with axial SpA manage their symptoms between hospital appointments.
- £250 could help us run an online session to help up to 20 people learn how to manage symptoms of axial SpA, such as extreme pain, severe exhaustion and poor sleep.
We urgently need your support
Your support for NASS and people with axial SpA is more critical than ever:
- As the NHS recovers from the pandemic, 67% of people with axial SpA are being left to cope with debilitating pain, exhaustion and fatigue alone.
- The current economic climate has meant that we have seen a reduction in fundraising income.
- With a cost-of-living crisis, more people than ever need support to claim life-changing disability benefits they are entitled to.
Axial SpA works silently. We don’t.
Axial SpA is an inflammatory condition of the spine and joints. Inflammation where muscles attach to the bones, causes extreme pain. It’s an invisible and often misdiagnosed condition. Often leaving people feeling powerless, in increasing pain and extreme exhaustion. If left untreated, it can permanently fuse bones together.
NASS is the only charity in the UK dedicated to supporting people with axial SpA. NASS doesn’t receive any statutory funding. We rely on your kindness and generosity, and other people like you, to help us transform the diagnosis, treatment and care of people with axial SpA and help more people live well with the condition sooner.
Adults in the UK
1 in 200 of the adult population in the UK have axial SpA (AS). That's twice as many as multiple sclerosis and Parkinson's disease.
Axial SpA (AS) is a condition that affects young people. Symptoms start late teens to early twenties, with the average age of onset being 24.
Years to diagnosis
The current average delay to diagnosis from when symptoms start is 8.5 years, by which irreversible damage to the spine may have occurred.
59% of people with axial SpA (AS) report experiencing mental health problems compared to 25% of those with musculoskeletal conditions overall.