Chief Executive's Blog

We're listening

It's our annual Members' Day on Saturday 17 June in Sheffield. It's an event I always look forward to, a chance to meet many of our members. I usually leave the event feeling warm and content that we have really helped make a difference to people's AS journey through...


That fundraising feeling

Some of you will know that about 3 weeks ago I ran the London Marathon. As NASS is such a small charity, we don't get any places in this event and so rely on people getting a ballot place and then deciding to run for us. I didn't manage...


World AS Day 2017

A key priority for NASS is to raise awareness about AS This is so important for many reasons.  For those struggling with undiagnosed back pain, it’s essential that we work to raise the understanding about AS amongst health care professionals (HCPs).  For those with a diagnosis, it’s essential that...


The London Marathon (and me)

I remember watching the London Marathon as a teenager and being totally in awe of the runners, vowing to myself, that one day I would take on the great challenge. Thirty-odd years later, with lots of 'life' in between, I'm finally taking on the challenge. So why now? Well,...


Invisible illness, invisible activity

There's a lot that goes on behind the scenes at NASS Sometimes some of the work we do takes weeks, months or even years to complete. Other times we can't share news and updates until a certain date. I attend a lot of meetings to influence the health landscape....


NICE Spondyloarthritis Guidelines

This week saw the publication of the NICE Spondyloarthritis Clinical Guideline. As far as I'm concerned that's a cause for celebration. Given that the delay to diagnosing ankylosing spondylitis is on average 8.5 years in the UK, NASS began its campaign to call for this Clinical Guideline back in 2012/13....


Bovril is the best medicine

In the last edition of AS News, our twice-yearly magazine for NASS Members and indeed on our Facebook page, we’ve talked about the benefits of having a pooch.  Many of you who’ve known me for a while will know that I lost my beloved Bisto, my 11 year old...


What does 2017 hold?

2016 was a great year for NASS. It was our 40th year, and packed with special events to mark that wonderful milestone.  I’m proud to say that NASS has been improving our service to you for a number of years now. Here are a few examples: We responded to...


The importance of pacing yourself - don't be like me!

Christmas is a busy time of year. There's so much extra to do, to fit in to our lives. I love this time of year and have a bad habit of taking on way too much. I know when I do too much, my body will let me know,...


The best job in the world?

A few weeks ago I was approached by our village church to see if I'd consider donating a Christmas tree to their Christmas Tree Festival this year. I said I would and so my family and I donated a tree and last Thursday it was time for me to...

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