There are also currently a number of studies taking part around the world and here in the UK looking at the impact of COVID-19. Below are those most relevant to axial SpA (AS), rheumatology and musculoskeletal conditions generally.
The CORE-UK study is being done at Kings College London. The study is looking at the experiences of people with arthritis who have contracted COVID-19. It is hoped this study will help to determine the risk of infection for people with rheumatic conditions.
This study is aimed at people living with rheumatic diseases across Europe who are experiencing confinement due to COVID-19. The aim of the REUMAVID study is to describe the consequences of the COVID-19 pandemic on the evolution of the disease, support services, healthcare, the quality of life and the emotional well-being of people living with rheumatic diseases. The study is supported in the UK by NASS, NRAS and Arthritis Action.
Chronic pain experiences during COVID-19
This study will provide evidence to guide how those with chronic pain can be assisted in similar situations in the future, but also highlight the importance of social interactions for either facilitating, or hindering, the pain experience to aid in pain treatment when normality resumes. The study should take no more than 25 minutes to complete.
The COVID-19 Global Rheumatology Registry – Patient Study
There is a global collaboration asking people with rheumatic conditions including axial SpA (AS) to self report on their experiences with COVID-19. It takes around 5 minutes to complete.
Global Study – do not complete if you have completed the European version
Effects of the COVID-19 pandemic on people with axial spondyloarthritis
This is a piece of research being conducted by the team at University College Hospital London looking at the effects of the pandemic on axial SpA. It takes around 2 minutes to complete.
SAA and ASIF COVID-19 & SpA patient survey
The Spondylitis Association of America (SAA) have compiled a self-reporting patient survey for people with spondyloarthritis which is now being advertising by the Axial Spondyloarthritis International Federation (ASIF). It looks at the medical experience of people with spondyloarthritis in direct relation to the virus. The survey should take around 10 – 15 minutes to complete.
Researchers from the University of East Anglia in Norwich are launching a new study to see how Covid-19 and lockdown are affecting people with bone, joint and muscle pain. The survey is about 15 minutes long, and they would like to see how the coronavirus isolation and social distancing measures are affecting people over the next 12 weeks. To do this, they will send the same survey online every 2 weeks to see if people’s health and wellbeing stays the same or changes. Please note that you will need the latest version of your browser for this to work.
The COVID-19 Global Rheumatology Registry – Clinician Study
If you are a clinician in Europe, please complete the EULAR registry which is being shared with the Global Rheumatology Registry, and those outside Europe should complete the Global version. Please note that these are both part of the same study, so do not complete both as this will skew the data.
Global Registry – do not complete if you have completed the EULAR Registry
COVID Symptom Tracker
Far more generic, this does not relate to axial spondyloarthritis including ankylosing spondylitis or rheumatology in general. You will be asked to set up a profile which takes around 5 minutes, and then you will be asked on a daily basis to enter how you are feeling even if you are well. It takes less than a minute. This is UK only and being run by Guy’s and St Thomas’ Biomedical Research Centre.
NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these links you understand that you participate in any research at your own risk and without liability to NASS.