News

Join the party with NASS Up North!

Inspired by our Fab At 40 Party last year, NASS Derby are hosting their very own NASS Up North Party - and you're all invited! The event will be held on Saturday 7 October at Kedleston Park Golf Club. There will be a drinks reception, followed by a fantastic three...


Sent home with an unstable spinal fracture

Dr Linda Dykes, Consultant in Emergency Medicine has co-produced a blog with NASS Member Gareth Dwyer. It highlights the risk of unusual, spontaneous and dangerous fractures in AS that may occur with minimal or no trauma. The blog talks very honestly about Gareth's unsatisfactory visit to the Emergency Department,...


And the 'You Changed My Life Award' goes to........

We launched our first ever Patients' Choice awards in 2016 to mark our 40th anniversary. You voted in your hundreds for the health professionals who have made the difference to you with your AS. Most of the awards were presented at our Parliamentary reception in Westminster in November 2016. But one...


BSR updates position statement on biosimilars

The British Society for Rheumatology have revised their position statement on biosimilar medications used in rheumatology. While BSR acknowledge that every new biosimilar agent will have undergone a stringent comparison against the reference medicine taking into account safety and efficacy, they note some doubts of the strength of the evidence. For example, clinical...


Ankylosing Spondylitis Register

The British Society for Rheumatology (BSR) Biologics Register for AS patients was set up in 2012 The register has now been running for 4 years and the investigators are able to use the register to look at the impact of AS on patients’ lives both in terms of the...


NASS becomes charity partner of Spine Race

We are delighted to announce that NASS will be the official charity partner of MONTANE® Spine® Fusion and Flare events in June 2017. New for 2017, the MONTANE Flare and Fusion races are summer versions of the iconic MONTANE Spine Race - a 268 mile, non-stop winter challenge encompassing the entire...


NASS in Parliament - AS it is 2016

On 2 November, we were delighted to welcome 120 people to the Houses of Parliament to campaign on behalf of people with AS but also to celebrate some of the most dedicated health care professionals around, hosted by Ben Howlett, MP for Bath. Our key message for the day...


Patients' Choice Awards

We were thrilled to celebrate some of the great care provided by health professionals around the country for people with AS at our parliamentary event on 2 November 2016. Raj Mahapatra awarded Dr Karl Gaffney with his 'Undercover Hero' award, before Dr Gaffney went on to announce the other...


Secukinumab (Cosentyx®) recommended by NICE for AS

NASS is delighted to report that NICE has published Technology Appraisal Guidance recommending secukinumab (Cosentyx®) as an option for treating active AS in adults whose disease has responded inadequately to conventional therapy (non-steroidal anti-inflammatory drugs or TNF-alpha inhibitors). The Technology Appraisal Guidance was published on 28 September 2016 and local CCGs...


NASS partners with Mablethorpe Marathon

  NASS is delighted to announce that it has become a charity partner of the Mablethorpe Marathon - and we'd love you to get involved. Debbie Cook, NASS Chief Executive, has joined the marathon committee as a volunteer and is helping support its organisation. The next event takes place in the...


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