Real life stories of people living with axial SpA (AS) are invaluable for us in raising awareness of the condition and the need for improvements in health care services. We’d like to hear from supporters who are willing to be a case study in the media, to bring the issue to life.
Am I suitable?
If you’re living with axial SpA (AS), then the short answer is YES!
We are looking for case studies of any age, and of any ethnicity, gender and background, living in the United Kingdom. It doesn’t matter whether or not you have previous experience of talking to the media, as we’ll walk you through the process.
You do need to be over 18 and understand that appearing in the media can mean that your photo will appear in the media – including on social media – and that once a story is published, it’s out there forever. The media can’t report anything you don’t tell them, and there are strict privacy guidelines that journalists must follow. We’ll support you throughout the process.
What’s involved in sharing my story?
The process begins with you having a chat on the phone with a member of our friendly Communications Team. We’ll talk about your diagnosis, how you live with your condition, and what improvements you’d like to see in care for people with axial SpA (AS). We’ll also talk a bit about you: where you live, who you live with, your career, interests and family, for example. This is just to give us a bigger picture of you as an individual.
We’ll then look at potential outlets who might be interested in covering your story. This could be a local or national newspaper, magazine, radio station or television programme. Of course, if you’re happy to talk to a newspaper but don’t want to appear on television, that’s fine: we will only put you forward for things you’re comfortable with.
If we arrange an interview for you, we’ll talk through the interview with you before it takes place, and then have a chat afterwards to see how it went. We’ll work with the journalist to make sure that they get the facts right and, wherever possible, we’ll ask for you to be able to read through any article before it’s published.
In most cases, newspapers and magazines will want a photograph of you, either a high resolution photo that you provide, or one taken by their own photographer.
Interested in sharing your story?
If you’re interested in sharing your story, please send an email to our Communications Team, with a brief outline of your own axial SpA (AS) journey, to firstname.lastname@example.org, or give them a call on 020 3011 5133.