Get involved in research
Researchers at the University of Aberdeen are looking for people diagnosed with axial spondyloarthritis (axial SpA) including ankylosing spondylitis (AS) to take part in a stakeholder consensus exercise.
What it’s about
We are completing a feasibility project focused on improving care for people who have axial SpA (AS) and other health conditions by providing Cognitive Behaviour Therapy (CBT) alongside the best care available. CBT is a type of talking therapy that has been shown to help patients with other musculoskeletal conditions, including chronic pain.
Early findings from the study are promising and now we need assistance in understanding at what part of their journey axial SpA (AS) patients would most benefit from a course of CBT. We also want to understand how best to ‘market’ CBT to people with axial SpA (AS) patients. This will help to inform the next stage of research into making CBT more widely available.
Who we are looking for
- Eight people who have had their axial SpA (AS) diagnosis for 2 years or less to join a focus group on 19 September 2019 between 11am and 3 pm at the NASS office in Hammersmith, London.
- Eight people who have had their axial SpA (AS) diagnosis for more than two years to join a focus group on 20 September 2019 between 11 am and 3pm at the NASS office in Hammersmith, in London.
What we will ask you to do
If you are interested in getting involved, you will be sent materials in advance to read and consider before the focus group. On the day, the researchers will ask questions and get your feedback in a group discussion format.
Lunch and refreshements will be provided.
Everyone who comes to the focus group will receive a £50 gift card voucher as a thank you. We are also able to pay travel expenses to anyone living within a London postcode.
For more information and a registration form, please contact Dr Elizabeth Ferguson-Jones , (firstname.lastname@example.org) Study Coordinator, by 30 Aug 2019. In your email please include your name, telephone number, age, and the time since your axial SpA (AS) diagnosis.
Thank you so much for your help.