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We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

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NASS thanks players of People’s Postcode Lottery

Thanks to funding from the Postcode Neighbourhood Trust, NASS is piloting online self-management sessions for axial SpA (AS) patients in ten centres across the UK.

Through our Helpline, we often hear from people living with axial SpA (AS) who are struggling to manage their condition. This can impact on work, study, family and social life, sleep and exercise. The COVID-19 pandemic has further exacerbated this issue, as since March many routine appointments, physiotherapy, hydrotherapy, and other NHS services have been delayed.

Empowering people to tackle the challenge of living with axial SpA (AS) has never been more important, and our support has never been more vital. That’s why in 2021, we are launching a new self-management programme to:

  • Help people living with axial SpA (AS) to feel empowered and confident about managing their condition
  • Build meaningful local connections between people living with axial SpA (AS)
  • Provide each participant with information about additional local and national resources

NASS Self Management Programme Officer, Zoë Clark, who herself lives with axial SpA (AS), will facilitate each two-hour session. These sessions will be run via zoom and will include group discussions, teaching sessions and some gentle exercise sessions. Topics will include: building a flare toolkit; managing pain; fatigue, and pacing.

Sally Dickinson, Head of Information and Support Services at NASS says, “We’ve already had a very enthusiastic response from rheumatology departments around the country, who feel our sessions have the potential to make a significant difference to help people confidently and effectively manage their axial SpA (AS)”

“This project has only been made possible by an award from Postcode Neighbourhood Trust, a grant-giving charity funded entirely by players of People’s Postcode Lottery. We are so grateful for the support and cannot wait to roll out this initiative in early 2021”.

Further information will be available in the New Year. If successful, we plan to roll this programme out to other areas across the country.

Peoples Postcode Lottery Postcode Neighbourhood Trust logo

Postcode Neighbourhood Trust is a grant-giving charity funded entirely by players of People’s Postcode Lottery. NASS received funding from the Trust to deliver our Self-Management Programme in 2021.