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Putting the Patient First: What Matters Most to Patients in the Diagnosis and Management of Axial Spondyloarthritis

26 March 2021

NASS is embarking upon crucial research to develop a deeper understanding of the values and needs of patients in the diagnosis and management of axial Spondyloarthritis (axial SpA).  

Although there is anecdotal evidence of patient experiences in using axial SpA services, there has not been any significant quantitative assessment of patient values and needs in axial SpA services. National and international guidelines are based on a predominantly clinical view of services. The study therefore aims to provide a critical counter-balance to the clinical perspective. 

In 2017 NICE published its first comprehensive guideline on the diagnosis and management of axial SpA followed by a Quality Standard in 2018. Howevera report published by the All-Party Parliamentary Group (APPG) revealed that there were widespread failings in meeting this standard. This research forms part of a broader programme led by NASS to bring greater health policy attention to axial SpA and stimulate improvements at local level. 

Dr Dale Webb, CEO at NASS said We want to ensure that axial SpA care is person-centred and reflects the values and needs of patients. The patient perspective is often not understood and is overlooked in designing services. This study will provide policy makers, commissioners and clinicians with new insights to ensure that axial SpA services provide the right care, at the right time and in the right way so that patients can manage their condition in the context of their life. 

Interested parties can find the full tender specification and associated application documentshere. 

The deadline for applications is 21 June 2021. To register their expression of interest and for an informal discussion with Dr Dale Webb, CEO NASS, potential applicants should contact dalewebb@nass.co.uk and cc aspiringtoexcellence@nass.co.uk.