NASS is about to embark upon a pioneering piece of research to establish the true impact that delayed axial SpA diagnosis has on the individual, the NHS, the economy and society.
On average, people in the UK wait over eight years to receive a diagnosis for axial SpA. This wait has a major impact on a persons’ health, wellbeing and quality of life. At NASS, we’re determined to tackle this and have launched our five-year Gold Standard Time to Diagnosis campaign which aims to reduce diagnosis timelines to a maximum of one year.
Dr Dale Webb, NASS CEO said: “Right now, people with axial SpA are waiting far too long to receive their diagnosis. We know that most people develop symptoms of axial SpA during their teens and early 20s, which means they are being forced to put their life on hold at a crucial time while they wait for a diagnosis. Careers, family plans, life-long goals and aspirations all have to wait until that person receives the clarity they deserve. At NASS, we’re determined to change this so that people can get answers and live well with the condition.
“This research project is a world first in axial SpA and will identify the full costs of delayed to diagnosis – costs to the individual, the NHS and society. Each year of delayed diagnosis results in avoidable costs which we will present to Parliamentarians, policy makers and commissioners to press the case for early diagnosis.”
NASS has been granted £50,000 to offer the successful candidate(s) in support of their work. We’ll be looking for industry leaders to take on this project, which is estimated to take at least six months.
This is a highly specialist field requiring health economics experts who have modelling capability and the ability to freely access all the relevant databases required to undertake the work. If you, or someone you know, might be interested in applying to lead this research you can read more about the opportunity here.
The deadline for applications is 31 May 2021. To register their expression of interest and for an informal discussion with Dr Dale Webb potential applicants should contact us via email@example.com in the first instance.