Share your experiences of support for managing axial SpA while living in Norfolk

We’re working on an exciting new project in Norfolk.

We’re looking to create support and resources for people living with axial SpA in Norfolk and the surrounding area, but we need your help first. We need the views of local people to help us understand the issues you’re facing, how you’re currently able to manage your condition, and what problems you face locally.

If you have axial SpA and live in Norfolk, your views are vital and we’d love to hear from you.

You can get involved in a number of different ways, so hopefully there’s a way that works for you.

Complete our short anonymous survey:

It takes less than 10 minutes to share your views and experiences in our survey. All responses are anonymous and will help us create resources and support.

Join a small online group discussion:

All of the group discussions are the same, we are offering different date options on:

Please only book one session, as spaces are limited. If you become unable to attend the session you’ve booked, you’re welcome to cancel your place and book onto another.

If you have any questions or accessibility requirements, please email sally@nass.co.uk. Also, just let me know if those dates don’t work for you and we’ll find another time to meet.

Look forward to seeing you there!

Other ways to get involved:

  • Contact us for a one-to-one chat, by emailing zoe@nass.co.uk
  • Join our in-person workshop later this year to help us design new support – email zoe@nass.co.uk to express your interest

Who are we?

The National Axial Spondyloarthritis Society (NASS) is the only charity in the UK dedicated to supporting people with axial spondyloarthritis (axial SpA), including ankylosing spondylitis (AS). This project is supported by funding from the Peter Harrison Foundation.

The project is led by NASS Programme Manager, Zoë Clark, who lives with axial SpA, and Sally Dickinson, NASS Head of Information and Support Services.