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We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

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Jake’s journey

I was diagnosed in my early 20s after my twin brother was diagnosed months earlier. It was the little noticeable things that prompted me to get myself checked out. Being unable to move my neck from left to right and lack of flexibility in my back were the two main problems.

Once diagnosed, I turned a blind eye to it all to be honest. I was thinking that these things don’t happen to a young man in his 20s. If anyone would ask me about my neck or back stiffness I would palm it off as a football injury, or the classic phrase “I must’ve slept on it funny”.

Gradually the symptoms have worsened over time. They have become more noticeable to the point where only recently I have started telling people about the disease. I can still do the vast majority of the regular things I enjoy like 5 a side football and running. However, when inflammation and fatigue occurs it becomes difficult to do even basic things.

Almost everyone responds with  “Ankylosing Spondylitis?, what’s that?” And I don’t blame them! I’d never heard of it either before my diagnosis, but my aim now is to manage the symptoms while raising awareness about this disease.

I used to find it difficult to tell people, because on the outside the symptoms weren’t always visible and I was hardly in pain, if at all!

I feel lucky in the fact that there is medication and excersises I can do to help. Some days are better than others of course but joining NASS makes me realise that there’s help out there when I need it.

Along with my brother and my dad, I ran a half marathon to raise money for NASS and the great work they do for AS awareness!

You can help transform AS futures for everyone

Become a NASS member and you’ll connect with others, get exclusive benefits and have a real impact on our future – all while helping fund our vital work.

Join us