Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.

We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

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Research Studies

This page details all of the current research studies looking for participants. Most of these studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, although we will also share research relating to long term conditions, pain and well-being.

We also currently have an additional section on studies related to COVID-19 which we have kept separate at the bottom of this page.

Axial Spondyloarthritis studies

Physical activity experiences of living with axial SpA (AS)

A specialist research team at the University of Bath and we want to better understand your experiences of living with this condition and your experiences of physical activity. The purpose of this survey is to better understand the factors associated with physical activity behaviour and the role physical activity may or may not have in managing the symptoms indicative of axial SpA (AS).

Take the survey

Attitudes of axial SpA Patients Towards Self Management

A researcher at the University of Bath is working on a project looking smartphone-based tools for measurement of the BASMI, with the goal of enabling people with axial SpA (AS) to measure their BASMI score at home, with the assistance of a friend or family member. Please complete the survey looking at patients’ attitudes towards managing their condition, and towards the BASMI to help buld an app that meets the needs of people with axial SpA (S) and fits comfortably into their existing self-management schedule. The survey should take between 20 and 30 minutes.

Take the survey

General rheumatology, arthritis and musculoskeletal studies

There are currently no general studies looking for participants. Studies will appear here when they are approved by NASS.

Long term conditions, pain, well-being and other studies

Activity Pacing in Chronic Pain

This project aims to study activity pacing, which is an approach to managing chronic pain by adapting one’s planning of activities and activity level. It will investigate the relationship between activity pacing and a set of psychological skills known as ‘psychological flexibility, and whether this relationship affects outcome in management of chronic pain. It is hoped that better understanding of this relationship may shed light on the most effective way to use activity pacing strategies for people with chronic pain conditions.

Find out more about the study

Take part in the study

COVID-19 specific Studies

CORE-UK

The information you provide will help clinicians determine the risk the infection poses to patients with rheumatological conditions. It will assist in determining whether medications for arthritis influence COVID-19 infection outcomes, and the influence of the infection on the rheumatological diseases themselves. This study is part of a large collaborative global effort to provide clarity for the rheumatological community.

CORE-UK

Chronic pain experiences during COVID-19

This study will provide evidence to guide how those with chronic pain can be assisted in similar situations in the future, but also highlight the importance of social interactions for either facilitating, or hindering, the pain experience to aid in pain treatment when normality resumes. The study should take no more than 25 minutes to complete.

Chronic Pain Experiences

The COVID-19 Global Rheumatology Registry – Patient Study

There is a global collaboration asking people with rheumatic conditions including axial SpA (AS) to self report on their experiences with COVID-19. It takes around 5 minutes to complete. You can either complete the European or Global version but please do not complete both as they are part of the same study.

European Study

Global Study – do not complete if you have completed the European version


NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.