Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.

We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

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Research Studies

This page details all of the current research studies looking for participants. Most of these studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, although we will also share research relating to long term conditions, pain and well-being.

We also currently have an additional section on studies related to COVID-19 which we have kept separate at the bottom of this page.

Axial Spondyloarthritis studies

Attitudes of axial SpA Patients Towards Self Management

A researcher at the University of Bath is working on a project looking smartphone-based tools for measurement of the BASMI, with the goal of enabling people with axial SpA (AS) to measure their BASMI score at home, with the assistance of a friend or family member. Please complete the survey looking at patients’ attitudes towards managing their condition, and towards the BASMI to help buld an app that meets the needs of people with axial SpA (S) and fits comfortably into their existing self-management schedule. The survey should take between 20 and 30 minutes.

Take the survey

Survey of Scottish people with axial SpA, their family and carers

NASS has been contacted by the Scottish Medicines Consortium and asked to give a submission on the licencing of a drug in Scotland. We have put together a questionnaire to find out the views of people with axial SpA (AS), plus their family members and/or carers in Scotland to make sure that we represent you as accurately as possible.

Take the survey

Outcome measures in clinical trials

NASS has been contacted by a group of international researchers who are looking to update the Assessment of Ankylosing Spondylitis International Society (ASAS) criteria for assessing and monitoring axial SpA (AS). This will be used for clinical trials to assess new treatments.. It is extremely important that patients are involved in the process so that we can include information that is important to them. There will be a virtual workshop on 13 November at 2pm lasting 2.5 hours and they would like 15 – 20 people living with axial SpA (AS) to take part. If you are interested in being a part of this important piece of research please email jill@nass.co.uk who will be able to give you more details.

General rheumatology, arthritis and musculoskeletal studies

There are currently no general studies looking for participants. Studies will appear here when they are approved by NASS.

Long term conditions, pain, well-being and other studies

Activity Pacing in Chronic Pain

This project aims to study activity pacing, which is an approach to managing chronic pain by adapting one’s planning of activities and activity level. It will investigate the relationship between activity pacing and a set of psychological skills known as ‘psychological flexibility, and whether this relationship affects outcome in management of chronic pain. It is hoped that better understanding of this relationship may shed light on the most effective way to use activity pacing strategies for people with chronic pain conditions.

Find out more about the study

Take part in the study

COVID-19 specific Studies

Affect of COVID-19 on care in rheumatology

A group of researchers and doctors from University College Hospital London have put together a questionnaire to find out how people have been affected by the changes to services. The survey should take approximately 10 minutes to complete.

Take the survey

CORE-UK

The information you provide will help clinicians determine the risk the infection poses to patients with rheumatological conditions. It will assist in determining whether medications for arthritis influence COVID-19 infection outcomes, and the influence of the infection on the rheumatological diseases themselves. This study is part of a large collaborative global effort to provide clarity for the rheumatological community.

CORE-UK

Chronic pain experiences during COVID-19

This study will provide evidence to guide how those with chronic pain can be assisted in similar situations in the future, but also highlight the importance of social interactions for either facilitating, or hindering, the pain experience to aid in pain treatment when normality resumes. The study should take no more than 25 minutes to complete.

Chronic Pain Experiences

SAA and ASIF COVID-19 & SpA patient survey

The Spondylitis Association of America (SAA) have compiled a self-reporting patient survey for people with spondyloarthritis which is now being advertising by the Axial Spondyloarthritis International Federation (ASIF). It looks at the medical experience of people with spondyloarthritis in direct relation to the virus. The survey should take around 10 – 15 minutes to complete.

SAA Survey

The COVID-19 Global Rheumatology Registry – Patient Study

There is a global collaboration asking people with rheumatic conditions including axial SpA (AS) to self report on their experiences with COVID-19. It takes around 5 minutes to complete. You can either complete the European or Global version but please do not complete both as they are part of the same study.

European Study

Global Study – do not complete if you have completed the European version


NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.