My AS, My Life
Videos, guides and resources giving practical advice on self-managing axial SpA symptoms
Visit the pageLiving with axial SpA is what happens between medical appointments
We’ve run consultations with patients and healthcare professionals to decide that our Supported Self-management Programme should:
Our dream is that every person newly diagnosed with axial SpA is signposted to Your SpAce for the information and support they need. Your SpAce enables people living with axial SpA to engage with their condition, learn more about axial SpA, and build skills to manage the impact it has on their life.
Co-produced by healthcare professionals and people living with axial SpA, Your SpAce is a credible resource you can easily signpost patients to. Our short videos and downloadable resources support people to build practical skills around:
It provides a much-needed community for people who are at the start of their axial SpA journey or who are struggling and feeling isolated. Since April 2023, we have run 21 online peer support meetups with over 610 attendees.
Order a free pack of promotional materials to easily signpost your patients. A promo pack contains A4 posters for clinics and postcards with QR codes that you can hand to patients.
We have shared results from the programme in:
We run regular webinars live-streamed across social media to give people with axial SpA:
Since April 2020, we have run 129 Live-streamed Webinars and had over 424,000 views.
Signpost your patients to our My AS, My Life homepage so they can access a whole library of videos supporting them to manage their axial SpA and the impact it has on their life.
Thanks to funding from the National Lottery Community Fund Northern Ireland, we’re working with healthcare professionals in Northern Ireland to develop and pilot two courses of 6 online supported self-management sessions. We’ll support people living with axial SpA to understand more about their condition, meet others who can relate, and build a supportive community.
We’re also very grateful for funding from National Lottery Community Fund Wales. We’re developing and piloting a series of three online self-management sessions and one face-to-face meetup to bring people with axial SpA together. We’re aiming to enable attendees to learn practical ways to manage their symptoms and the impact axial SpA has on their life.
Since January 2021, we have run 60 online self-management sessions in partnership with 48 rheumatology teams and reached 1606 people living with axial SpA.
We’ve shared results in:
We are currently:
If you would like to be involved in future consultations regarding the programme, please contact Zoë Clark our Programme Manager.
If you would like to share any information, knowledge or research updates with our community, please contact Zoë to learn more about running a My AS, My Life live.
Videos, guides and resources giving practical advice on self-managing axial SpA symptoms
Visit the pageOrder free guides to hand out to your patients, or they can download them directly from our website
Find out moreFind your local branch to signpost patients to, offering a welcoming community and physio-led exercise classes
Find your branch