Take part in research

This page details all of the current research studies looking for participants. Studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, as well as research relating to long term conditions, pain and well-being.

Are you a researcher? Visit our information for researchers page to find out how to get your study advertised across our channels.

Axial Spondyloarthritis studies

Mama Pregnancy Study

Do you have experience of, or are you planning pregnancy and live with axial spondyloarthritis including ankylosing spondylitis? Do you want to shape clinical research?

Researchers at the Universities of Manchester and Oxford need people to join their MAMA trial advisory panel investigating biological therapies in pregnancy.

They are putting together a group of people with experience of inflammatory arthritis who are pregnant, have been pregnant, and those who are considering a pregnancy. Some are committing just really minimal time, and hour here or there looking at materials (e.g. patient information). Some are going to give more time for the advisory groups and help steer the study conduct.

All time committed to helping us will be fully reimbursed according to the current involve rates, and we would pay you directly. You can check these on the NIHR website.

If you are interested, please contact: mama@npeu.ox.ac.uk

Men living with axial SpA

What is the study about?
We would like to find out more about the coping, self-management and help-seeking behaviours of men living with axial spondyloarthritis. We would like to find out more about what it is like for men to have axial SpA. At the moment we know more about what it is like for women to have a rheumatic condition than men, and very little research has focused on men with axial SpA.  We would like to find out about your experiences of living with axial SpA, how you manage your symptoms, and how you decide when to contact your medical team.

The study is suitable for people who:

  • Identify as male.
  • Are aged 18 or older.
  • Have Axial SpA (non-radiographic axial spondyloarthritis (nr-axial SpA) and ankylosing spondylitis (AS).
  • Have internet access and access to or willing to download Teams.
  • Are willing to attend an online interview.
  • Able to speak and read English sufficiently to provide informed consent and take part in an interview.

 Study safety

This study has been approved by University of the West of England Health & Applied Sciences Faculty Ethics Committee.

Am I eligible?
If you have Axial Spondyloarthritis, identify as male and are 18 years of age and over.

Contact us: If you have any questions, please contact Emily Barnes via email: emily4.barnes@live.uwe.ac.uk

 

Interoception and the levels of physical activity in people with axial spondyloarthritis including ankylosing spondylitis

Interoception is the ability to be aware of internal sensations in the body, including heart rate, respiration, hunger, fullness, temperature, and pain, as well as emotional sensations. It is believed to be a key component to many mindfulness or mind-body interventions. This survey should take around 15 minutes to complete and will cover questions regarding your condition (axial spondyloarthritis including ankylosing spondylitis), your levels of physical activity and your interoception awareness.

https://essex.eu.qualtrics.com/jfe/form/SV_6W5h7PpfjZPUD6C

 

General rheumatology, arthritis and musculoskeletal studies

There are currently no studies in this category.

Long term conditions, pain, well-being and other studies

Chronic pain from the perspective of employees

Researchers from Glasgow Caledonian University are looking for employees of small to medium size businesses, that’s companies with less than 250 employees. They would like to interview people working for such organisations who experience chronic pain to find out what they need to remain in employment. If you are interested please read the Employee Information Sheet and get in contact with Ronald O’Kane on ronald.okane@gcu.ac.uk.

Inflammatory eye disease

Researchers at Kings College London are developing a new tool to help clinicians understand how inflammatory eye conditions impact those who have them. For people with axial SpA or ankylosing spondylitis, that will most commonly be uveitis, or iritis as it is sometimes known.

To help them develop this tool, please take part in a quick survey: https://qualtrics.kcl.ac.uk/jfe/form/SV_4T1n3YwslTKjYaO


NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.

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