This page details all of the current research studies looking for participants. Most of these studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, although we will also share research relating to long term conditions, pain and well-being.
We also currently have an additional section on studies related to COVID-19 which we have kept separate at the bottom of this page.
Axial Spondyloarthritis studies
Priority Setting in Psoriatic Arthritis
The British Psoriatic Arthritis Consortium is working with the James Lind Alliance to run a priority setting partnership (PSP). They are looking to create a national top 10 list of research priorities for psoriatic arthritis.
In our first survey about psoriatic arthritis they asked “what do you think are the most important unanswered questions in psoriatic arthritis research?”. We have combined the responses of over 317 people into 46 summary questions. They are asking for your help to choose the top 10 unanswered questions you want psoriatic arthritis research to address.
General rheumatology, arthritis and musculoskeletal studies
Global Rheumatology Alliance COVID-19 Vax Survey
The COVID-19 Global Rheumatology Alliance are surveying people with rheumatic disease to better understand their experience during the COVID-19 pandemic and explore risk factors for developing COVID-19. With the recent availability of various COVID-19 vaccines, they are interested in learning how people with rheumatic disease make decisions regarding the vaccines.
Long term conditions, pain, well-being and other studies
Activity Pacing in Chronic Pain
This project aims to study activity pacing, which is an approach to managing chronic pain by adapting one’s planning of activities and activity level. It will investigate the relationship between activity pacing and a set of psychological skills known as ‘psychological flexibility, and whether this relationship affects outcome in management of chronic pain. It is hoped that better understanding of this relationship may shed light on the most effective way to use activity pacing strategies for people with chronic pain conditions.
COVID-19 specific Studies
Reumavid Part 2
During the first wave of the pandemic last year NASS collaborated with an pan-European group led by the University of Seville to conduct research into people’s experiences of living with a rheumatic condition during the pandemic. There is now a follow up study taking place which you can take part in.
The information you provide will help clinicians determine the risk the infection poses to patients with rheumatological conditions. It will assist in determining whether medications for arthritis influence COVID-19 infection outcomes, and the influence of the infection on the rheumatological diseases themselves. This study is part of a large collaborative global effort to provide clarity for the rheumatological community.
Chronic pain experiences during COVID-19
This study will provide evidence to guide how those with chronic pain can be assisted in similar situations in the future, but also highlight the importance of social interactions for either facilitating, or hindering, the pain experience to aid in pain treatment when normality resumes. The study should take no more than 25 minutes to complete.
NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.