External Research Studies

This page details all of the current research studies looking for participants. Studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, as well as research relating to long term conditions, pain and well-being.

Axial Spondyloarthritis studies

Interoception and the levels of physical activity in people with axial spondyloarthritis including ankylosing spondylitis

Interoception is the ability to be aware of internal sensations in the body, including heart rate, respiration, hunger, fullness, temperature, and pain, as well as emotional sensations. It is believed to be a key component to many mindfulness or mind-body interventions. This survey should take around 15 minutes to complete and will cover questions regarding your condition (axial spondyloarthritis including ankylosing spondylitis), your levels of physical activity and your interoception awareness.


Exploring the diagnosis of axial spondyloarthritis (or ankylosing spondylitis)

A NASS member with axial SpA, Rebecca Parris, is doing a PhD at Lancaster University.  She will be looking at the experiences of people with axial SpA and health care professionals during the diagnosis of the condition.

She would like to interview people who:

  • Have received a confirmed diagnosis of axial spondyloarthritis (or ankylosing spondylitis);
  • In the UK;
  • Whose diagnosis took two years or more.

A bit more about the study:

  • Interviews will last 30 minutes to one hour.
  • Participants will be asked to talk about their personal experiences around their diagnosis.
  • Interviews will need to be completed by Spring 2024, with the deadline for expressing an interest December 2023.

Rebecca is keen to talk to as wide a range of people as possible and would therefore like to hear from people of all ages and backgrounds. She will also be talking to GPs. If you are interested in taking part, please contact r.parris1@lancaster.ac.uk.

For more in-depth information download participation information sheet.

General rheumatology, arthritis and musculoskeletal studies

There are currently no studies in this category.

Long term conditions, pain, well-being and other studies

National Pain Study

The survey is a collaboration between the Alleviate Pain Data Hub, Pain UK, which the Patients Association is a member of, the Advanced Pain Discovery Platform (APDP) and Chronic Pain Australia. The survey will highlight the lived experience and current issues impacting the UK chronic pain community. Its findings will help determine direction and strategy and ultimately accelerate pain research. Follow the link in the button below to take the survey.


Chronic pain and barriers to exercise

This study aims to inform clinical practice by identifying potential psychological barriers to physical activity in adults with chronic pain. If you are an adult who suffers with chronic pain (pain lasting or recurring for more than 3 months), please do take part in the 15-minute online survey. Please note, no personal details are required and all data will be anonymous and confidential. This study is being conducted by a final year student as part of a Psychology Degree at Newcastle University. Please follow the link to find out more information and if you wish to take part.


Chronic pain from the perspective of employees

Researchers from Glasgow Caledonian University are looking for employees of small to medium size businesses, that’s companies with less than 250 employees. They would like to interview people working for such organisations who experience chronic pain to find out what they need to remain in employment. If you are interested please read the Employee Information Sheet and get in contact with Ronald O’Kane on ronald.okane@gcu.ac.uk.

Inflammatory eye disease

Researchers at Kings College London are developing a new tool to help clinicians understand how inflammatory eye conditions impact those who have them. For people with axial SpA or ankylosing spondylitis, that will most commonly be uveitis, or iritis as it is sometimes known.

To help them develop this tool, please take part in a quick survey: https://qualtrics.kcl.ac.uk/jfe/form/SV_4T1n3YwslTKjYaO

NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.