Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.

We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

If you are able to make a donation to NASS today, we'd be so grateful.

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External Research Studies

This page details all of the current research studies looking for participants. Most of these studies relate to axial SpA (AS), arthritis, rheumatology and musculoskeletal conditions, although we will also share research relating to long term conditions, pain and well-being.

We also currently have an additional section on studies related to COVID-19 which we have kept separate at the bottom of this page.

Axial Spondyloarthritis studies

Understanding Personal Shielding Experiences

The University of Manchester are looking for people to share their experiences of shielding. They are offering 1 to 1 interviews, the opportunity to participate in a focus group and also inviting people to submit creative materials such as photographs or poems. Every participant will be offered a £20 Amazon voucher as a thank you.

Register your interest here

International Map of Axial Spondyloarthritis

NASS is looking for people to take part in an international research survey into axial SpA (AS) to improve the quality of life for those affected by the condition. It’s online, anonymous and will only take 40mins to complete. 

The International Map of Axial Spondyloarthritis (IMAS) has been developed by people with axial SpA (AS). IMAS is looking at the impact of axial SpA (AS) from the perspective of those living with the condition. The project will provide a better understanding of the challenges people face and generate insights into the real-life experiences. 

Complete the research here

General rheumatology, arthritis and musculoskeletal studies

Your healthcare priorities

The University of Aberdeen are looking for people with a diagnosed rheumatic or musculoskeletal condition to complete a survey as part of the RHEUMAPS study. This survey will help to understand the healthcare priorities of those living with a rheumatic and musculoskeletal conditions and how these might differ in rural and urban communities.

The information gathered in this study will help to make recommendations to support health service planning. The survey will ask a series of questions to help us understand people’s experiences and priorities for care. It should take about 20 minutes to complete.

Take part here

Global Rheumatology Alliance COVID-19 Vax Survey

The COVID-19 Global Rheumatology Alliance are surveying people with rheumatic disease to better understand their experience during the COVID-19 pandemic and explore risk factors for developing COVID-19. With the recent availability of various COVID-19 vaccines, they are interested in learning how people with rheumatic disease make decisions regarding the vaccines.

Take the survey here

Long term conditions, pain, well-being and other studies

Building a ‘pain forecast’ to predict chronic pain events 

Researchers at the University of Manchester are using data to build a pain forecast. This would work a little like a weather forecast and provide information such as pain severity in the future. The researchers are hosting a focus group and questionnaire to learn the opinions of participants around the possible information provided by this pain forecast.

Find out more information about the study and sign up here 

Flourishing and adolescent chronic pain

Researchers at the University of Bath are conducting a study to look at how young people (and their parents) may (or may not) experience some positive aspects as a result of living with ongoing pain. We are inviting young people between the ages of 11 and 24 who experience chronic pain to take part in this study, and also parents or caregivers of these young people to take part.

Potential participants interested in taking part can click on the link in the study advert to learn more about the study. Clicking on the link will take you to a website which tells you more about the study and what you need to do to take part. Taking part in the study will involve completing some online questionnaires about your pain and functioning (or your child’s pain). We will ask you to complete the same questionnaires in six months’ time.

Young people will receive a £5 Amazon voucher when they complete the first set of questionnaires and another £5 Amazon voucher when they complete the second set of questionnaires six months’ later.  Parents/caregivers will be included in a prize draw to win one of 14 Amazon e-vouchers worth £25 each once they complete the first set of questionnaires, and again when they have completed the questionnaires again six months’ later.

Download the study advert

Take part in the screening questionnaire

Activity Pacing in Chronic Pain

This project aims to study activity pacing, which is an approach to managing chronic pain by adapting one’s planning of activities and activity level. It will investigate the relationship between activity pacing and a set of psychological skills known as ‘psychological flexibility, and whether this relationship affects outcome in management of chronic pain. It is hoped that better understanding of this relationship may shed light on the most effective way to use activity pacing strategies for people with chronic pain conditions.

Find out more about the study

Take part in the study

 


NASS is happy to share research requests but is not responsible for the content of external websites. By following any of these external links you understand that you participate in any research at your own risk and without liability to NASS.