In 2018, NASS worked with parlimentarians to launch the All-Party Parliamentary Group for Axial Spondyloarthritis (APPG). The group is co-chaired by Tom Randall MP and Lord Campbell-Savours, who both live with axial SpA (AS). Tom Randall also hosted an adjournment debate in parliament in September to discuss the delay to diagnosis. Read more about our work with the APPG and our future plans here.
Following publication of the NICE Guideline for Spondyloarthritis in 2017, NASS contacted all Clinical Commissioning Groups (CCGs) in England to encourage the implementation of the guideline. We also worked with the Arthritis and Musculoskeletal Alliance (ARMA) to publicising the guideline through their MSK Hub.
In 2016 we held our ‘Patient Choice and Patient Voice’ event in Parliament. We aimed to celebrate great care around the UK with our Patient Choice Awards, emphasising the patient voice and asking MPs to support the implementation of the NICE Guideline. With research showing only 12% of people with axial SpA (AS)n have a written care plan, we also called for more people to be given written care plans.
Our 2014 parliamentary reception focused on access to physiotherapy. the event saw support from MPs Caroline Dinenage and Heather Wheeler, as well as an excellent piece by Mr Irranca-Davies in the Huffington Post.
2013 saw the launch of our ‘AS it is’ campaign, calling for a Clinical Guideline and Quality Standard for Spondyloarthritis to be produced by the National Institute of Health and Care Excellence (NICE). We were successful, following a year of lobbying the Department of Health and NHS, an adjournment debate in Parliament and a meeting with the then Minister for Care and Support Norman Lamb MP.