Physical branch meetings are currently cancelled due to COVID-19. However there are virtual activities being run by some branches. Please contact your local branch for more information.

We hope you find the information on these pages helpful. Our team is working tirelessly to provide up to date advice in relation to the COVID-19/Coronavirus pandemic. Record numbers of people are now turning to NASS for support, and we hope to be here for everyone. Our helpline and advice service are only possible thanks to donations from people like you.

If you are able to make a donation to NASS today, we'd be so grateful.


Campaigning in Parliament

We are working to raise awareness and understanding of the issues around axial SpA (AS) around the UK

Every Patient Every Time campaign

In December 2018, at a reception at the UK Houses of Parliament in Westminster, we launched our new campaign Every Patient, Every Time, to ensure that Every Patient, Every Time gets the care and support that they need when living with axial SpA (AS). We work to grasp any opportunity we can to raise awareness and influence in all four nations of the UK.


In 2018, NASS worked with parlimentarians to launch the All-Party Parliamentary Group for Axial Spondyloarthritis (APPG). The group is co-chaired by Tom Randall MP and Lord Campbell-Savours, who both live with axial SpA (AS). Tom Randall also hosted an adjournment debate in parliament in September to discuss the delay to diagnosis. Read more about our work with the APPG and our future plans here.

Following publication of the NICE Guideline for Spondyloarthritis in 2017, NASS contacted all Clinical Commissioning Groups (CCGs) in England to encourage the implementation of the guideline. We also worked with the Arthritis and Musculoskeletal Alliance (ARMA) to  publicising the guideline through their MSK Hub.

In 2016 we held our ‘Patient Choice and Patient Voice’ event in Parliament. We aimed to celebrate great care around the UK with our Patient Choice Awards, emphasising the patient voice and asking MPs to support the implementation of the NICE Guideline. With research showing only 12% of people with axial SpA (AS)n have a written care plan, we also called for more people to be given written care plans.

Our 2014 parliamentary reception focused on access to physiotherapy. the event saw support from MPs Caroline Dinenage and Heather Wheeler, as well as an excellent piece by Mr Irranca-Davies in the Huffington Post.

2013 saw the launch of our ‘AS it is’ campaign, calling for a Clinical Guideline and Quality Standard for Spondyloarthritis to be produced by the National Institute of Health and Care Excellence (NICE). We were successful, following a year of lobbying the Department of Health and NHS, an adjournment debate in Parliament and a meeting with the then Minister for Care and Support Norman Lamb MP.


NASS is regularly represented by members in Scotland at the Cross Party Group for Arthritis and Musculoskeletal Condition. In 2020 NASS attended several meetings as well as presenting our plans for a gold standard time to diagnosis.

In 2019, NASS co-sponsored a drop in event in Holyrood and presented at their September meeting on the Every Patient, Every Time campaign. In November 2019, Dale Webb presented the results of the national inquiry into axial SpA services in Scotland.

Our first reception in the Scottish Parliament took place in 2015, where we called for better access to physiotherapy and for the decision to close permanently two of the three hydrotherapy pools in NHS Lothian to be reversed. Margaret McCulloch, then MSP for Central Scotland hosted the event, and a passionate appeal to keep hydrotherapy pools open in Scotland was delivered by NASS West Lothian Chair Murray Brown. Over 30 MSPs attended, including Maureen Watt, who was Minister for Wellbeing at the time.

Our campaign was successful and all three hydrotherapy pools remain open, following a combination of parliamentary and local level lobbying.


At the end of 2020 NASS became members of the MSK Pathway Steering Group for Welsh Government.

In 2017 NASS joined the Arthritis and Chronic Musculoskeletal (MSK) Group at the Welsh Parliament/Senedd (formerly Welsh Assembly), and took part in a workshop late in the year to discuss upcoming draft framework for MSK conditions in Wales.

In 2014 we launched our ‘AS it is’ campaign in Wales. The event was held at the Senedd and attended by Mark Drakeford AM, Health Minister (now First Minister), who spoke about the need to reduce delays to diagnosis in Wales.

Read more