We are excited to be launching a call for evidence as part of our efforts to establish a Gold Standard in Treatment and Care for Axial Spondyloarthritis as part of the Aspiring to Excellence programme.
We are looking for people with lived experience of axial SpA and health care professionals to share with us their real life examples of good treatment and care.
For people with lived experience, for example this might be a course or education session you attended, a new way of being able to communicate with your health care team which improved your experience, or a routine that you were able to develop with your health care team to help with a specific part of living with axial SpA.
For health care professionals, for example this might be implementing a protocol, developing a way of working with other disciplines or introducing a self-management course.
We are working on five workstreams, with a variety of sub categories within those:
- Organisation of Care
- Pharmacological interventions (medication)
- Therapy-led interventions
- Extra axial care
- Living with axial SpA
You will be able to find a full description of what we mean by a gold standard, and a more in depth look at the workstreams in our Call for Evidence – Gold Standard in Treatment & Care for axial SpA document.
When you have read the Call for Evidence – Gold Standard in Treatment & Care for axial SpA document, we would then like you to complete our template either as a Word document or via a Survey Monkey link.
The Call for Evidence will close at 5pm on Friday 26 July 2024. Please return evidence in Word documents to email@example.com