Trusts and Foundations

We are incredibly grateful to all of our Trust and Foundation supporters who help us unrestricted and restricted funding to provide medical advice, practical support about living with axial SpA, emotional well-being support, and welfare and benefits advice to everyone with axial SpA who needs us.

For a full list of funders of our work at NASS, read our latest annual accounts and report here.

We would like to say a special thank you to the following Trusts and Foundations for their kind support by granting NASS unrestricted funds. This funding is essential. It gives us the flexibility to direct funding to where it’s needed most, and adapt our work when needed.

  • Douglas Heath Eves Charitable Trust
  • John Coates Charitable Trust
  • Lord Leverhulme’s Charitable Trust
  • Margaret Jeannie Hindley Trust
  • Marsh Christian Trust
  • Souter Charitable Trust
  • Sir Jules Thorn Charitable Trust
  • The Baker Charitable Trust
  • The Bernadette Charitable Trust
  • The Edward Gostling Foundation
  • The February Foundation
  • The Forrester Family Trust
  • The G C Gibson Charitable Trust
  • The Hamilton Wallace Trust
  • The Hospital Saturday Fund
  • The Mary Homfray Charitable Trust
  • The Simon Gibson Charitable Trust
  • The Thousandth Man-Richard Burns Charitable Trust
  • The Weinstock Fund

We’d also like to say a huge thank you to the following Trusts and Foundations for funding our online regional self-management programme and NASS Voices events:

  • The Norman Family Charitable Trust
  • The Ganzoni Charitable Trust
  • The David Gibbons Foundation
  • Northern Pharmacies Limited Trust Fund
  • The Edward Cadbury Charitable Trust
  • The James Tudor Foundation
  • The James Weir Foundation
  • The Alice Ellen Cooper Dean Charitable Foundation
  • The Eveson Charitable Trust
  • Ursula Keyes Trust
  • The Hugh Fraser Foundation
  • The Walter Guinness Charitable Trust
  • The William Webster Charitable Trust
  • The Michael Cornish Charitable Trust
  • The Purey Cust Trust CIO
  • The Shanly Foundation
  • The Garfield Weston Foundation
  • Stoke-on-Trent and North Staffordshire CCGs Long Term Condition Support Fund
  • Miss M E Swinton Paterson’s Charitable Trust
  • Lottery Awards for All
  • Innovate UK

What Trusts and Foundations can expect when partnering with us

We value and support every Trust and Foundation we work with.

To us, a partnership is more than financial support. It’s about having the same values, mission and principles. It’s about shared learning, respect and support.

If you’re a Trust or Foundation working with us, you can expect the following:

We’ll report back on the impact of your donation

We monitor and evaluate all our projects and programmes. This way you’ll know how your funding is making a difference.

We’ll invite you to exclusive events

At these events you’ll learn more about our work and hear from the people we support.

The impact of your support

  • £10 can enable our Helpline team to respond to a call or email and provide guidance and advice to anyone affected by axial SpA.
  • £25 could help provide a pack of NASS guidebooks for a local axial SpA clinic.
  • £50 could help our team provide 1:1 welfare and benefits support for someone living with axial SpA.
  • £100 could help by contributing towards the cost of one of our weekly My AS My Life sessions to help people living with axial SpA manage their symptoms between hospital appointments.
  • £250 could help us run an online session to help up to 20 people learn how to manage symptoms of axial SpA, such as extreme pain, severe exhaustion and poor sleep.

We urgently need your support

Your support for NASS and people with axial SpA is more critical than ever:

  • As the NHS recovers from the pandemic, 67% of people with axial SpA are being left to cope with debilitating pain, exhaustion and fatigue alone.
  • The current economic climate has meant that we have seen a reduction in fundraising income.
  • With a cost-of-living crisis, more people than ever need support to claim life-changing disability benefits they are entitled to.

Axial SpA works silently. We don’t.

Axial SpA is an inflammatory condition of the spine and joints.  Inflammation where muscles attach to the bones, causes extreme pain. It’s an invisible and often misdiagnosed condition. Often leaving people feeling powerless, in increasing pain and extreme exhaustion. If left untreated, it can permanently fuse bones together.

NASS is the only charity in the UK dedicated to supporting people with axial SpA. NASS doesn’t receive any statutory funding. We rely on your kindness and generosity, and other people like you, to help us transform the diagnosis, treatment and care of people with axial SpA and help more people live well with the condition sooner.

Get in touch

If you are part of a Trust or Foundation that would like work with NASS to support people with axial SpA, please email or call 020 8741 1515 and press option 2.

Contact the fundraising team
  • 220k

    Adults in the UK

    1 in 200 of the adult population in the UK have axial SpA (AS). That's twice as many as multiple sclerosis and Parkinson's disease.

  • 24

    Average age

    Axial SpA (AS) is a condition that affects young people. Symptoms start late teens to early twenties, with the average age of onset being 24.

  • 8.5

    Years to diagnosis

    The current average delay to diagnosis from when symptoms start is 8.5 years, by which irreversible damage to the spine may have occurred.

  • 59%

    Mental health

    59% of people with axial SpA (AS) report experiencing mental health problems compared to 25% of those with musculoskeletal conditions overall.

Other ways to fundraise